The dark side of NPSLE that no one understands
The dark side of NPSLE that no one understands NPSLE is short term for Neuropsychiatric Systemic Lupus Erythematous. People may not know how NPSLE like me suffers. You may looked well physically, but what is going up in our minds are only known to the sufferers. Sometimes when you are well and lively, you felt that your brain is trapped in a useless body. It frustrates you when you can’t even finished up the whole day tasks planned ahead, as by noon, your body will slow down and joint aches will recur. You try to push yourself to finish up the work, you may need more energy to concentrate and stay focus, but soon…work may be getting slower as you try to do things meticulously to avoid any mistakes that would usually sets in at this point. You are also struggling to hold on and put some amount of energy to the pen you are holding, with the tired and aching fingers. At the same time, trying hard to maintain an illegible handwriting. What I experienced
